HISTORY OF THE WOMEN'S HEART FOUNDATION
The Women's Heart Foundation (WHF) (originally
known as "Women's Heart Research Foundation") was incorporated June
11, 1992 by New Jersey nurse, Bonnie Hartman Arkus. WHF was founded as a 501(c)
(3) charitable organization to "advance research and education for women's
health".
Ms. Arkus founded the organization in response to a
need
to improve women's heart health and heart care after her mother's premature
death from heart disease. On Mother's Day 1986, Bonnie's mother had a heart
attack. She was told that she must have open heart bypass surgery as she had
"left main disease". Her mother died immediately after the surgery.
She had just turned 60.
After the operation, Ms. Arkus learned that women have
a
death rate 3-4 times that of men after undergoing open-heart bypass surgery,
that there are no options given to patients who have "left main
disease" other than having open-heart bypass surgery, and that there was
little known about how heart disease affects women differently.
Ms. Arkus felt compelled to raise awareness about these issues and to advocate
for
change.
From 1987 to1989, Ms. Arkus' advocacy took the form
of phone-calling, letter-writing and visiting officials in Washington. Soon after her grass-roots effort began, the American Heart Association started new
programs to raise awareness about heart disease in women and the National
Institutes of Health established the Office of Research for Women's Health.
Public attention was raised about how heart disease symptoms present differently
in women, how diagnostic testing is less reliable in women and how treatments
differ for women with heart disease. Diagnostic delays were found to be
contributing to more advanced vessel disease with poorer outcomes for women,
especially younger women who smoke.
In October, 1991, Ms. Arkus started organizing events to
raise money for research on heart disease as it affects women and successfully
raised over $12,000. She donated the money to the American Heart Association as
dedicated funds for research on women, however, AHA informed Ms. Arkus that
American Heart Association guidelines prohibited fund raising for any special
groups (e.g. women), therefore, she would have to team with another nonprofit in
order to raise money for women. Ms. Arkus wanted to continue her efforts to
raise awareness and to fund raise for women and heart disease, and, therefore,
decided to form a new nonprofit heart organization dedicated to improving the
survival and quality of life for women with heart disease.
Since 1991, the Women's Heart Foundation has served the
public by designing and implementing new heart health programs for women, making
available more consumer heart health information to the public and educating
professionals about how heart disease affects women differently.
Early Conferences
Steering Committee -
In November 1994, in Woodbridge, New Jersey, the Women's Heart Foundation convened a closed conference session
with a panel of health experts to discuss care issues surrounding women with heart disease.
The 15-member panel represented a multi-disciplinary approach to
address these issues and helped to define a path for WHF.
Nurses' Meeting
In February 1996, in Princeton, NJ, the Women's Heart Foundation convened a closed conference session with nurse clinicians
to discuss and make recommendation for interventions that may improve a woman's outcome.
The 7-member panel is shown in photo. Nurses who participated in a closed conference on women and heart disease in Princeton, NJ incuded: (L-R) Arla Sussman, RN, Manager, Cardiac
Surgery at Robert Wood Johnson University Hospital, New Brunswick; Kathy Vidal, RN,
Cardiac Care Nurse at Morristown Memorial Hospital; Maria Cayanan, RN,
Coronary Care Nurse at Morristown Memorial Hospital; Susan Holohan, RN, Ambulatory
Emergency Services at Helene Fuld Medical Center; Rosi Te, RN, Post-op Open
Heart Surgery Nurse at Columbia Presbyterian Medical Center; Bonnie Arkus, RN, Homecare
Nurse and Executive Director WHF; Katherine Hilaire, RN, Cardiac Rehabilitation Nurse
at Robert Wood Johnson University Hospital, New Brunswick. Funded by the
Women's Heart Foundation, the closed conference session
took place at the Marriott Hotel in Princeton as a weekend retreat. The purpose of the meeting
was to outline specific strategies that may improve women's survival form cardiovascular disease.
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